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Queen Square Centre for Neuromuscular Diseases

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Patient and Public Engagement

The Centre has an active programme of patient and public engagement.

We undertake a range of events and activities with the following goals:

  • Supporting and educating patients and their families to understand and manage neuromuscular diseases
  • Providing patients and families with information about, and access to, research trials and experimental treatments
  • Informing the general public about neuromuscular diseases

Young person's open day

Charcot-Marie Tooth Disease and associated neuropathies

Channelopathies

Mitochondrial disease

Inclusion body myositis

Myotonic dystrophy

No current information.

McArdle disease