Queen Square Centre for Neuromuscular Diseases
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- Genomics England whole genome sequencing
Genomics England is a project set up by the Department of Health, due to start in January 2014. This is an important opportunity for patients with neuromuscular disorders to have their genome sequenced in order to maximise their chance of a genetic diagnosis. Please click on the link above for further information.
- New sister centre partnership with the University of Iowa Department of Neurology
- Update in Neuromuscular Disorders - registration now open
17th-20th March 2014, Queen Square, London
- Expression of interest to join McArdle Expert Patient Group
- Centre Director Professor Michael Hanna takes part in today's BBC 'World Have Your Say' discussing Department of Health press release
- Innovative genetic treatment to prevent mitochondrial disease
- The Centre for Neuromuscular Diseases team successfully completed their 5th bupa 10k in a row on 27th May 2013
- Launch of the John Morgan Hughes Fellowship
- Business case to develop Neuromuscular Complex Care Centre approved by UCLH Trust Executive Board
The National Brain Appeal, the charity dedicated to raising funds for the hospital, has worked with Professor Michael Hanna, and were successful in opening the UK’s first comprehensive Centre for Neuromuscular Diseases in December 2009. The new Centre at 8-11 Queen Square has brought together the entire team of Queen Square experts in these fields, led by Professor Hanna. It includes a clinical trials facility and IT systems to support the development of new treatments and facilitate translational research to benefit patients. The Centre is a truly unique environment supporting young scientists to develop research programmes to find treatments for these serious diseases.
We urgently need to raise funds to support important clinical research in the new centre, and in particular to support young scientists we are training. We have already raised funds for two young scientists. We had one hundred applications for these two posts, and we would like to give a larger number of talented young scientists the opportunity to do research in these diseases in our new centre. Professor Hanna is personally committed to continue to raise funds to develop a comprehensive programme for talented young scientists to join the team and help drive the research to find treatments.
Neuromuscular neurological diseases are serious muscle wasting disorders which often affect children and young adults. There are over 100 neuromuscular diseases and common examples include Motor Neurone Disease, Polymyositis, Inclusion Body Myositis, Peripheral Neuropathy, Myaesthenia Gravis, Muscular Dystrophy and other life threatening diseases. They affect well over 100,000 people in the UK. For many of these diseases we still don’t have cures and we want to change this.
Please contact Glen Pickard, Fundraising Assistant, at email@example.com or on 020 7829 8724 for further details.
BUPA London 10k - Monday 27th May 2013
The CNMD team with their 2013 Bupa 10,000 medals
The Centre for Neuromuscular Diseases team successfully
completed their fifth bupa 10k in a row on 27th May 2013.
We want to continue our vital work, and in particular we want to raise funds to support more young scientists and doctors to develop research programmes to find treatments for these serious diseases in the Centre. But to achieve this we need your help.
Any donation, no matter how small, will be gratefully received.
The Centre for Neuromuscular Diseases would truly value your support.
Professor Michael G Hanna
Queen Square Divisional Clinical Director
National Brain Appeal
Registered Charity No. 290173